Agenda

Registration/checkin and sign-up

Welcome and Meeting Objectives
Elizabeth Kittrie, Senior Advisor for Data Science, NIH
Philip Bourne, Associate Director for Data Science, NIH

Vannevar Bush in the 21st Century
Keynote by John Wilbanks, Chief Commons Officer, Sage Bionetworks

Vision and Overview of Open Science Prize
Robert Kiley, Head of Digital Services, the Wellcome Library, the Wellcome Trust
Philip Bourne, Associate Director for Data Science, NIH

Open Science Prize Demonstration of Results
Six finalist teams to present their prototypes
Moderator: John Wilbanks

The public is invited to vote at the Open Science Prize website from December 1 to January 6, and help decide which prototypes are the most novel and impactful.

• OpenTrialsFDA: Making Unbiased Clinical Trial Data Accessible – Enables researchers and the public to better access, search, and understand drug approval packages submitted to and made available by the Food and Drug Administration (FDA).
• Real-Time Evolutionary Tracking for Pathogen Surveillance and Epidemiological Investigation – Tracks emerging diseases, such as Ebola and Zika, in a real-time online visualization platform where the outputs of statistical analyses can be used by public health professionals within days of samples being taken from patients.
• Fruit Fly Brain Observatory – Pools global laboratory data to facilitate the complex scientific collaboration necessary to advance computational disease models for mental and neurological diseases by connecting data related to the fly brain.
• Open Neuroimaging Library – Applies online gaming principles to advance brain research by engaging the public in collaborative annotation, discovery, and analysis of brain imaging data.
• MyGene2: Accelerating Gene Discovery via Radically Open Data Sharing – Provides an open data platform for researchers, clinicians, and families affected by rare diseases to share health and genetic information to speed diagnosis, identify matching cases, and transform the process of gene discovery.
• OpenAQ: A Global Community Building the First Open, Real-Time Air Quality Data Hub for the World – Provides real-time air quality information to the global public by making air quality data from around the world available in one open-source and open data platform.

Break

Open Science: An NIH Perspective
Francis Collins, Director, National Institutes of Health and Harold Varmus, Lewis Thomas University Professor at Weill Cornell Medicine and former Director, National Institutes of Health and former Director, National Cancer Institute
Moderator: Chris Wiggins, Chief Data Scientist, New York Times and Associate Professor of Applied Mathematics at Columbia University

Lunch
Meet the Open Science Prize finalists and view posters from NIH’s Big Data to Knowledge Initiative.

New Models for Open Science Emerging Around the Globe
Niklas Blomberg, Founding Director, Elixir
Peter Goodhand, Executive Director, Global Alliance for Genomics and Health
Robert Kiley, Head of Digital Services, the Wellcome Library, the Wellcome Trust
Tanja Davidsen, Project Manager, National Cancer Institute
Moderator: Philip Bourne, Associate Director for Data Science

Viewpoints on Open Science and Open Data in Biomedical Research
Heather Joseph, Executive Director, SPARC
Mike Huerta, Associate Director, National Library of Medicine
Jim Anderson, Director, Division of Program Coordination, Planning and Strategic Initiatives, NIH
Mike Coburn, Executive Vice President, Research!America
Reactions from Open Science Prize Advisors
Moderator: Jerry Sheehan, Assistant Director for Scientific Data and Information, White House Office of Science and Technology Policy.

Closing Remarks
Elizabeth Kittrie, Senior Advisor for Data Science, NIH
Philip Bourne, Associate Director for Data Science, NIH